As we knew might happen, Milagros was returned to the Ventilator after two days. She worked so hard those days to breathe more on her own but we could also see that she was really struggling. As parents we always hope for the best so it's no surprise that we took the news with heavy hearts. She is such a fighter and I believe she really wanted to succeed but her lungs wouldn't let her. At her last echocardiogram there was some improvement in the pulmonary hypertension, it had dropped slightly, but for Milagros to be extubated she has a long way to go. There are two other big updates : 1) Milagros has a spiffy new crib, its a Pediatric crib and feels alot more like a real crib, it also allows us alot more room to interact with her !:2) the pulmonoligists have set up a tracheal surgery for next Friday, this is a big deal and would replace the annoying tube in her mouth. The tracheal tube would deliver oxygen through her trachea and allow full use of her mouth. This is also significant because if she can show improvement on the trache there is a good possibility she can come home in the next couple of months.
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