Milagros had a really bad night. Her oxygen levels dropped so low that she had to be resucitated; doctors, nurses and emergency personel filled the room. She was successfully brought back and has maintained stable oxygen levels for the last 8 hours or so. She has these bad episodes every few hours and they appear to be getting worse. On the other hand, when she is awake her eyes are wide open and she is the most playful she has ever been, what a roller coaster ! We spent the night in the hospital in a small room on the floor to be near her given that the episodes started to happen more frequently. We are still here at the hospital and the kids went back to ronald mcdonald houseclate last night. The charge nurse was kind enough to let Emiliano (baby brother) meet Milagros for the first time, he was so quiet and concerned, he looked at all of her tubes and into her eyes. Milagros was
wide awake and made direct eye contact with her brother for several seconds. The nurses said most babies cry when they enter because they can feel the pain in the room. Emiliano didn't make a peep, he blew a kiss to Milagros and waved to the nurses when he left, it was really a terrific moment for both of them. Milagros follows mom and dad with her eyes and enjoys us singing to her, she also is good at trying to conversate, even with all those tubes in her mouth. Today we will be at the hospital all day with Milagros singing, talking and praying with her ! She is such a beautiful fighter, her eyes and mind say yes and her pulmonary hypertension tries to make her miserable
We were thrilled when we found out that Rosario was pregnant. At our 16 week ultrasound we found out that we were having a baby girl ! Shortly after we received devastating news: our bay girl had an omphalocele and a congenital diaphragmatic hernia. Specialists gave baby Milagros a slim chance of survival. A true fighter, she was born on May 29th. We hope to share a slice of her life with family and friends who have given us so much love and support !
Milagros in the NICU at 5 weeks old
Sunday, July 21, 2013
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