Milagros in the NICU at 5 weeks old

Milagros in the NICU at 5 weeks old

Wednesday, July 10, 2013



 
Milagros recovering from CDH Surgery Repair

This Monday marks two weeks since the Pediatric team at Kaiser Sunset repaired Milagros's diaphragmatic hernia through open chest surgery. The anticipation and anxiety before and after the surgery was tremendous. The Surgeons were able to bring her intestine that had passed through the diaphragm and was suffocating her lungs down into her abdomen, were it belongs. They patched the hole in the diaphragm with a Gortex patch. Milagros took the surgery very well !! The surgeons also found a few big suprises : first a negative, that the liver had also slipped through the diaphragm and was putting pressure on her heart, the surgery also fixed this, the surgeons brought her liver back into her omphalocele and her abdomen. Secondly, nothing short of a MIRACLE, that Milagros had a full left lung that literally popped open as soon as the intestine was removed ! For those that remember, doctors had mentioned before Milagros was born that they could not visibly see a left lung on the MRIs, therefore her chances of surviving birth were so low. Well sure enough Milagros had been fighting this whole time to grow a full left lung even with the intestine smothering it's development, truly a miracle in the doctors opinion. The recovery after Milagros's surgery has been slow but steady, with bumps in the road. She is still heavily sedated, with high oxygen support on a ventilator and her pulmonary hypertension has not lessened significantly. She has some good days and some bad days, but she is fighting so hard to get better.........below is a simple picture of Milagros's CDH condition that I found helpful as a visual. I have also attached a photo of Milagros immediately following her surgery, you can see the gauze on the left side of her chest where the incision was made for the surgery

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